For Patients and Families

caregiver providing aids to cognition as post-its to male patient.

The Columbia University Alzheimer’s Disease Research Center (ADRC) assigns equal importance to patient outreach and advocacy.

Patient Outreach and Advocacy

For over 25 years, the leadership of the ADRC has actively participated in local, national, and international efforts to support patient outreach and advocacy. These efforts include forums arranged by the National Institute on Aging, the Alzheimer’s Association, and other national organizations. Our Center also ensures that our research participants are provided with an optimal experience as we form our relationship with them and their care community.

The Columbia University ADRC is located in a heavily populated area in Manhattan and serves more broadly in the tri-state area including New York, New Jersey, and Connecticut. We have established close working relationships with local patient and caregiver support networks and other organizations—including museums, libraries, places of worship, and various assisted living communities.

On this webpage we have compiled local and national support groups and digital resources that you can use immediately.

Columbia University Center of Excellence for Alzheimer’s Disease (CEAD)

CEAD is dedicated to providing access to subspecialist care for individuals with Alzheimer’s Disease and related disorders.

Visit the Center of Excellence for Alzheimer’s Disease (CEAD)

Learn More About Dementia

Educational Videos for Patients and Caregivers

Health & Memory Genetic Testing (English.) Interview with Jill Goldman, MS, MPhil, CGC; Professor of Genetic Counseling in Neurology Columbia University Irving Medical Center.
Health and Memory (English.) Interview with Dr. James M. Noble, Associate Professor of Neurology at Columbia University Irving Medical Center.
Salud y Memoria (Spanish.) Entrevista con el Dr. Rafael A. Lantigua; Profesor de Medicina y el Deán Asociado de Servicios Comunitarios.
Salud y Memoria (Spanish.) Entrevista con el Dr. Jose A. Luchsinger, Profesor de Medicina y Epidemiología.
Lewy Body Disorders Overview.
Lewy Body Disorders - Speech and Swallowing Presentation.
Lewy Body Disorders Seminar Series - Social Work and Caregiver Support.
Living with Lewy Body Disorders Seminar Series - Exercise for Lewy Body Disorders.
Living with Lewy Body Disorders - Cognitive Impairment.
Living with Lewy Body Disorders- Fall Prevention.
Lewy Body Dementia Seminar Series - Palliative Care Hospice Care.

Alzheimer's and Dementia Support Programs and Digital Resources

NYC Chapter Alzheimer’s Association

Helpline: 1.800.272.3900 Offers information and support services to people with Alzheimer’s disease and their caregivers and families. Alzheimer's Association TrialMatch® is a free, easy-to-use clinical studies matching service that generates customized lists of studies based on user-provided information.

CaringKind

CaringKind offers free services for people with memory loss and their families. Services include:

Social Work Services
Support Groups
Early Stage Center
MedicAlert® NYC Wander’s Safety Program
Palliative and. Residential Care program
Connect2Culture®
TogetherWeCare® by CaringKind
24-Hour Helpline: 646-744-2900

Arts & Minds

Arts & Minds is a not-for-profit organization committed to improving quality of life for all people living with Alzheimer’s disease and other dementias through engagement with art. We partner with museums to provide meaningful art-centered activities that create positive emotional and cognitive experiences, enhance verbal and non-verbal communication, reduce isolation, and build community. Our programs empower people with dementia, family members, professional caregivers, and educators to strengthen social, emotional, and spiritual bonds by engaging with art.

Arts & Minds programs have moved from Museum spaces to your space! Check the website for programs you can view at home during COVID-19.